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Web Sites
The Hope of Alzheimer's - An Advocates Journey
The Hope of Alzheimer’s: An
Advocate’s Journey is a documentary film in progress of the
amazing story of Mary Kay Baum and her sister
Chris Van Ryzin—two women who refuse to accept the diagnosis of
early onset Alzheimer’s as a death sentence. This web site will
give you an opportunity to watch video clips of the film, link you with
other sites for more information on early onset Alzheimer's and to join
a forum to share your story with others.
Tangled Neuron
Mona Johnson helped set up our first forMemory database. Her own
website and weekly emailed articles are an excellent resource for
laypersons wanting to understand today's research on memory, dementia
and Alzheimer's.
Dementia USA
Find information on Alzheimer's disease, dementia, memory
loss & problems, and more. Includes symptoms, prevention, care giving, and treatment information.
Journal of Alzheimer's Disease
an international multidisciplinary journal with a mission to facilitate
progress in understanding the etiology, pathogenesis, epidemiology,
genetics, behavior, treatment and psychology of Alzheimer's disease.
Alzheimer's Averted: A Path to Survival
A Path to Survival writtenby Christine Francis Baum VanRyzin, 300 page paperback book available
for $25. Contact Chris at (920) 734-9638 or email cbvanryzin@aol.com
Alzheimer's Daily News
Mark & Ellen Warner's "Alzheimer's Daily News" provides daily
subscription to excellent summaries of the latest research on
Alzheimer's and related neurological diseases. They provide links to
the research itself.
Alzheimer's Reading Room
Bob DeMarco's "Alzheimer's Reading Room" stresses late stage issues
because Bob cares for his 93 year old late stage mother. But he has
refreshing views and understandings that appear almost daily.
The Myth of Alzheimer's
Peter Whitehouse, MD, Ph.D is the principal and author of the book of
the same title. The site stresses reducing stigma and make care in
aging a whole community responsibility. The site points out problems
with early testing and drug promises. The site does explore
humanizing, positive inter-generational approaches.
www.usagainstalzheimers.org
George Vradenburg, a former media executive, and the driving force
behind the Alzheimer's Study Group and his spouse Trish write this
nationally read blog. Trish is the author of "Surviving Grace," her
comedic/dramatic homage to her mother, who
succumbed to Alzheimer's. The play was produced at the Kennedy Center,
Off-Broadway, and internationally.
Alzheimer's & Dementia
Alliance of WI
The Alzheimer's & Dementia Alliance of Wisconsin provides direct
programs and services in the south central Wisconsin area and advocacy
on dementia-related issues affecting the entire state. Professional
staff help navigate the complex maze of early memory loss,
Alzheimer's disease or other dementia. Guidance, education, support
and advocacy are provided to help maximize the quality of life for all
affected. Contact 608.232.3400 Madison office
888.308.6251 toll-free email support@alzwisc.org |
