
People with
Early Onset Alzheimer’s Disease (EOAD) have played an important part in
solving the mysteries behind Alzheimer’s disease. Families with EOAD contributed to early genetic studies because the disease pattern,
unfortunately, was seen in multiple generations. We who are affected by EOA and
Related Diseases want to continue to be a major participant in seeking
and finding ways of curing and preventing neurological symptoms. Early
Onset Disease
has the most profound impact both on families and society by challenging young families physically, mentally and emotionally. Not only stressing
financial futures but often striking before there is even a chance for financial security.
Introducing:
Where We Turn Blocks Into Bridges
Camp Building
Bridges is a "Pilot" Program respite camp for young teens
ages 13-16 that have parents with dementia, specifically Alzheimer's
Disease and Frontal Temporal Lobe Dementia. Camp Building Bridges is
funded by the Hille Foundation and public donations in the hopes that
this camp can bridge nation wide in the future to make the camp more
accessible to other families. To learn more about this camp, visit
the
Camp Building Bridges
web site.
forMemory Registry Questionnaire
One of the goals of the group is to
document the diagnoses, symptoms and treatment and health of people with
Alzheimer's dementia and other type of memory loss to spotlight early
symptoms, patterns and potential treatments that may have been
overlooked. You can help by participating in this database. For
more information, download the following forms or contact Christine Baum
VanRyzin, President of forMemory, at cbvanryzin@aol.com or 920-734-9638.
forMemory Informational Letter
forMemory Informed Consent Form
forMemory Questionare
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